Our Mission

Our mission is to improve home monitoring support for infants with complex congenitial heart disease through:

• A better experience for parents and healthcare professionals.
• Increased parental empowerment and understanding.
• Improved clinical outcomes for the babies.

Congenital Heart Disease (CHD) occurs in 60.9 out of every 10,000 births.​ Approx. 1/3 of these babies are born with complex CHD which requires urgent life-saving surgery, often within the first weeks of life. ​

Infants are typically discharged after their first surgery with a home monitoring programme. It is at this time when young infants are at their most vulnerable, to condition deterioration or death. This is due to: 

• A lack of parental knowledge
• A lack of clear pathways to hospital  advice and care
• Inadequate understanding in community health professionals

This is a very frightening time for new parents. The immense responsibility of caring for a sick, vulnerable baby at home can be terrifying.​