7. How do cardiac professionals know about the CHAT?
Research into parents’ experiences of going home with their baby began in 2011. The CHAT was developed in 2012. It was based on what was found in the first study, which explored parents’ needs.
A wide range of professionals and parents have been involved in the ongoing development and evaluation of the CHAT. Research about the design and how easy it is to use has been an important part of the development. We have also evaluated how the CHAT had helped parents to increase their knowledge and confidence in looking after their baby at home after their first stage of heart surgery.
Although the CHAT was developed in the UK it has been shared worldwide. Other countries have shown interest in using the tool.
Sharing with Professionals.
The development team have shared the work and development of the CHAT with professionals both in the UK and worldwide. This sharing has been done through:
- Presenting at cardiac healthcare professional conferences. Presentations have been given to a wide range of healthcare professionals.
- Creating posters to explain the work and results of using the CHAT. These are displayed in a large hall at a conference. Professionals can gather to read and discuss the work presented. It also gives them the opportunity to share new ideas.
- Writing about the development, progress and evaluation and getting this published in healthcare professional journals.
UK and worldwide conferences and poster presentations.
Click on the arrow at the right side of the picture below. Then click again, to see more information.
Title: ‘Psychosocial adjustment and adaptation in parents with complex congenital heart disease going home for the first time following first stage cardiac surgery: A Prospective Review.’
Title: ‘Traversing the boundaries and boarders of discharge from hospital following first stage surgery for complex CHD: parents’ experiences.’
Title: ‘Adaptability of a Parental Early Warning Tool Outcomes from a feasability study on Parental Home Monitoring and Assessment.’
Title: ‘A teaching and learning project to enable healthcare professionals to appropriately prepare parents for discharge home with their infant after complex cardiac surgery.’
Title: ‘Leveraging technology for the assessment and monitoring of infants with complex congenital heart disease in the community.’
Presentation of:
Psychosocial adjustment and adaptation in parents of infants with complex congenital heart disease going home for the first time following first stage cardiac surgery: A Prospective Review .
Presenter and principal investigator of the study Kerry Gaskin was shortlisted for Nurse Scientist Award. Kerry was awarded runner up.
Publications in healthcare professional journals.
The following links show articles about the development and review of the CHAT. These have been written for healthcare professional journals.
Please be aware: There are access limits due to copyright, but the most recent two articles are open access.
Smith, L., Wray, J., & Gaskin, K. (2022). Evaluating the congenital heart assessment tool: A quality improvement project. Cardiology in the Young, 1-8. doi: 10.1017/S1047951122001792 available Open Access https://doi.org/10.1017/S1047951122001792 click on this link
Gaskin K, Smith L, Wray J (2022) An improved congenital heart assessment tool: A quality improvement outcome. Cardiology in the Young, 1-6. doi: 10.1017/S1047951122001275, Epub 2022 May 2. available Open Access https://www.doi.org/10.1017/S1047951122001275 click on this link
Gaskin, Kerry, Barron, D. and Wray, J. (2021) Parents’ experiences of transition from hospital to home after their infant’s first stage cardiac surgery: psychological, physical, physiological and financial survival. Journal of Cardiovascular Nursing. Vol. 36, No. 3, pp. 283–292 ISSN 0889-4655 doi: 10.1097/JCN.0000000000000727. Access https://pubmed.ncbi.nlm.nih.gov/32842034 click on this link
Gaskin KL, Wray J, Barron DJ (2018) Acceptability of a parental early warning tool for parents of infants with complex congenital heart disease: a qualitative feasibility study Archives of Disease in Childhood, 103 (9):880-886 ISSN 0003-9888 Online: 1468-2044 Published online 22nd March 2018 doi: 10.1136/archdischild-2017-313227. Epub 2018 Mar 22. Access https://pubmed.ncbi.nlm.nih.gov/29567664 click on this link
Gaskin KL. (2018) Patterns of Transition Experience for Parents Going Home from Hospital with their Infant after First Stage Surgery for Complex Congenital Heart Disease. J Pediatr Nurs. 2018 Jul-Aug;41:e23-e32. doi: 10.1016/j.pedn.2017.11.013. Epub 2017 Dec 6. Access https://pubmed.ncbi.nlm.nih.gov/29217153 click on this link
Gaskin KL, Barron DJ, Daniels A (2016) Parents’ preparedness for their infant’s discharge following first-stage cardiac surgery: development of a parental early warning tool, Cardiology in the Young, online first June 2016 doi: 10.1017/S1047951116001062. Epub 2016 Jul 19. published online first 19/7/16, Access https://pubmed.ncbi.nlm.nih.gov/27431411 click on this link